Page 33 - Support Magazine Winter 2017
P. 33

10. What was the FIRST treatment you received for end-stage kidney disease? Choose one of the 5 options.
           Haemodialysis (in hospital or dialysis centre)                  Kidney transplant from a living donor
           Home haemodialysis                                                     Kidney transplant from a deceased donor
           Peritoneal dialysis (APD/ CCPD or CAPD)
       11. In which year did you start your FIRST treatment?
       12. How long before the start of your FIRST TREATMENT were you told about different treatment options?
          Choose one of the options below.
           No information received before the start of my first treatment   4-12 months before the start
           Less than 1 month before the start                                  More than 12 months before the start
           1-3 months before the start

       13. Please mark ALL SOURCES where you received information from. Mark all that apply.
           Nephrologist            Nurse                                    Brochure/booklet                 Kidney patients organisation
           Other doctor            Other kidney patients            Website/internet
       14. Please rate your satisfaction with ALL THE INFORMATION provided for each treatment at any point in time.
          Also rate your satisfaction with information for treatments you never received. Choose one option per treatment.
                                                                        No info received    Very good    Good        Neutral           Bad      Very bad
          Haemodialysis
          Home haemodialysis
          Peritoneal dialysis (APD/CCPD or CAPD)
          Kidney transplant from a living donor
          Kidney transplant from a deceased donor
          Conservative management
          (treatment including medication and diet
          instead of dialysis or kidney transplantation)
       15. In general, how was THE DECISION about the type of treatment you receive, made? Choose one option.
           I make the decisions alone
           I decided, but I took my doctor’s opinion into serious consideration
           My doctor and I decided together
           My doctor decided, but took my opinion into serious consideration
           I left the decisions to my doctor
           My doctor decided without considering my opinion
       16. Please mark ALL PEOPLE that influenced your decision about the type of treatment you receive. Mark all that apply.
           Husband/wife or partner                       Other kidney patients                  Employer/ supervisor at work
           Other family members                          My doctor                                    Another person
           Friends                                                  My nurse                                     Nobody
       17. Please rate your satisfaction with the way DECISIONS are made on the types of treatment you receive.
          Choose one option.
           Very good         Good          Neutral          Bad        Very bad
       18. What was or is YOUR EXPERIENCE with each type of treatment for end-stage kidney disease you ever
          received? Please tick ‘No experience’ if you never received this treatment. Choose one option per treatment.
                                                                          No experience       Very good     Good         Neutral            Bad       Very bad
          Haemodialysis
          Home haemodialysis
          Peritoneal dialysis (APD/CCPD or CAPD)
          Kidney transplant from a living donor
          Kidney transplant from a deceased donor
       19. In your opinion, what is important when deciding about choice of treatment? Choose one option per row.
                                                                         Very important    Important        Neutral      Unimportant     Very unimportant
          Survival
          Quality of life
          Costs
          Social life
          Work or study
          Travel or holidays
          Flexibility to adjust the treatment schedule
          Dietary restrictions
          Independence
          Safety
          Convenience
          Body appearance
          Frequent contact with health care professionals
          Company of other patients
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