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order to care for the person diagnosed. While         person they are supporting in a different light. It
        understandable at an early stage it is not advisable  includes enabling the person to do what they can.
        that this should continue long-term. The family       With    time    the   family
        member needs to care as much for themselves as        member will develop
        the person diagnosed, otherwise they run the risk     their knowledge and
        of carer fatigue or burnout.                          skills to enable them     members should
                                                              to care in a way that     seek support and
        KEEPING THE BALANCE BETWEEN                           keeps    a    balance      help when they

        DOING AND NOT DOING                                   between the needs              feel they
           One of the temptations many family members         of the person being             need it.
        give in to is to do too much for the person they are  supported and of the
        supporting or caring for. This is often done out of   needs of the family member
        concern but it has two major pitfalls. Firstly, it    themselves.
        renders the person being supported redundant as          Family members should seek support and help
        if they feel useless and dependent. Secondly, in      when they feel they need it.
        time, the family member can become resentful at
        the lack of initiative or effort of the person they are  SEEING CARING FROM A POSITIVE
        supporting. This resentment contributes to carer      PERSPECTIVE
        fatigue making caring unsustainable in the               Often this revolves around three elements.
        long-term.                                            ● Acting as a unit. In this case adjustments or
           Even though caring or                                                changes are made in tandem with
        supporting       can       be                                           the person diagnosed. The
        demanding and difficult it is                                           person feels included and the
        important to acknowledge                                                family member feels their needs
        that it also can be rewarding                                           are also taken into consideration.
        and life enhancing. For this
                                                                                ● Mutual support. In this case
        to occur two things have to
                                                                                it is the person diagnosed who
                                                                                offers support and care thereby
                                                                                creating an atmosphere where
        ADJUST TO THE                                                           both parties support each other.
           This    may    eventually                                            ● Carer’s personality, that is,
        happen in time but the road                                             the growing belief that they can
        towards adjustment can be                                               cope even though they were
        long and difficult. To achieve                                          uncertain whether they could or
        it may involve seeing the                                               not.

           All the support services listed at the back of this book are

           accessible for families too. Alternatively most treatment centres

           are happy to support you also or link you to a local support


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