Page 18 - EMOTIONAL WELLBEING 2014_WEB_Layout 1
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WHO SHOULD TELL MY

        CHILDREN/
        GRANDCHILDREN?
           The information should come
        from someone who is close to the
        child, you or your partner or a
        close relative.


        HOW CAN I TELL MY
        CHILDREN/

        GRANDCHILDREN?
           This can take some time and
        thought, and it can help to
        rehearse what you are going to
        say. Try to use the most clear and
        simple explanations possible; it can help to link the information with things they have already observed
        or been told.


        WHAT SHOULD I TELL MY CHILDREN/GRANDCHILDREN?
        ● Use the correct words for the illness, e.g. renal or kidney failure, dialysis.
        ● Explain how your health may be affected, e.g. tiredness, feeling sick sometimes, needing dialysis.
        ● Give some information on how the treatment works in simple, clear language.
        ● Reassure them about their daily routine and that as a family you will all continue to  make each day as
           good as it can be.



                                                                          In talking with your child or grandchild
                                                                          about your illness you are trying to
                                                                          remove some of the mystery, and for
                                                                          some, the fear that they can associate
                                                                          with illness and hospitals. You can do
                                                                          this through conversation, allowing
                                                                          them to ask questions, and at times,
                                                                          showing and explaining the dialysis
                                                                          machines to them.
                                                                            For those doing home dialysis it is
                                                                          important the children get to see the
                                                                          dialysis machine and have it explained
                                                                          to them in language they can
                                                                          understand. For haemodialysis patients,
        older children could be invited to attend the unit and a dialysis session. With the support of a healthcare
        professional, or just on your own, children can have comforting and helpful conversations about what renal
        disease is and how the dialysis treatment works.
           If you feel you would like help talking with your children/ grandchildren, then ask for support
        from a member of your healthcare team.








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